It’s been just over a year since I first mailed my paperwork and extensive records to the Center for Endometriosis Care in Atlanta. I remember the day I sent out the 2 inch thick stack of papers, just hoping Dr. Sinervo would accept me as a patient. It’s been nearly 9 months since I flew to Atlanta and underwent endometriosis excision surgery. Let’s just say that this Christmas was so much more enjoyable for my entire family. When you have endometriosis, it impacts even the youngest family members! I have my 8 year old son blogging with me today to share his side of what it’s like having a mom with endometriosis. And, on the contrary, what it’s like to have a mom who has had excision.
I’m Charles. I am 8 years old and in the second grade. I like football, baseball, and taekwondo. My favorite color is pink! I even have pink and black shoes. I love my mom. My mom has endometriosis.
Interview with Charlie
Can you tell the readers what endometriosis is?
Endometriosis is bad stuff that is in your uterus. My mom doesn’t have a uterus because I ripped it when I was born. But she still has endometriosis in her intestines. Endometriosis spreads all over inside your body like a spider web.
It gives my mom bad stomachaches and bad headaches. She couldn’t eat a lot of things without getting sick. Sometimes she would even puke! One time my mom was in the shower and she passed out because she was in a lot of pain. She had to go to the emergency room, and our grandpa had to take me and my brother to school that day.
Does going to the emergency room ever help?
Not really. When mom went to the emergency room, she got a shot and they talked to her. She was still in pain. She stayed in bed all day long.
How does it make you feel when your mom is hurting from endometriosis?
It makes me feel sad because I don’t get to see my mom very much when she’s in pain. She wants to see us, but she can’t because it hurts to move or walk. Sometimes I make her breakfast in bed (if she can eat), and I will go talk to her to check on her. I braid her hair or comb it because it’s fun and Mom thinks it’s relaxing.
How did your mom start feeling better?
She went to Atlanta and had surgery. A doctor took out all the endometriosis in her body. There was a lot of endometriosis in her body! I missed my mom when she was gone. She was away for 10 days, but she was a lot better when she got back!
You saw the videos taken during excision. What did you think?
I thought that the videos were nasty! There was something inside my mom that looked like a baseball bat! The endometriosis looked black. I watched the doctor cut and burn the endometriosis out. I saw the doctor spray water on the wounds, and burn them to make them stop bleeding.
Do you think the surgery helped your mom?
I think the surgery helped Mom because she can eat a lot of different foods now. She was in lots of pain, but the doctor was awesome and helped my mom so much. I am happy that she is better now! She is happy too!
If you had any advice for other kids whose moms have endometriosis, what would you tell them?
If you are sad, you can make your mom breakfast in bed and braid her hair to help her feel better. I’d tell them to have their mom go to Atlanta to my mom’s doctor because he helped us so much! My mom feels a lot better and can do a lot more things with us now!
Kids tell it like it is, and this dude pretty much hit the nail on the head. Endometriosis is miserable for the whole entire family! With skilled excision, however, you CAN get your life back and feel better! If you are suffering from endometriosis and considering excision, I’m happy to share my experience with you!
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